Cancer Risk Assessment and Genetic Counseling in an Academic Medical Center: Consultands' Satisfaction, Knowledge,...

Area of Science:

• Medical Genetics
• Oncology
• Preventive Medicine

Background:

• Established a comprehensive cancer genetics program in 1995.
• Program integrated clinical services, research, and education.
• Focused on cancer risk assessment and genetic counseling.

Purpose of the Study:

• Evaluate patient satisfaction with cancer genetics services.
• Identify areas for program improvement.
• Assess the impact of counseling on patient anxiety and risk perception.

Main Methods:

• Telephone interviews conducted 3-12 months post-consultation.
• Surveyed 51 individuals who received cancer risk assessment and genetic counseling.
• Included patients with and without a personal history of cancer.

Main Results:

• 90% of respondents found the consultation valuable.
• 42% reported decreased anxiety; 56% reported no change.
• Recall of numerical risk estimates was poor; one-third could not recall any risk estimate.
• 90% would recommend the service to friends, 75% to family.

Conclusions:

• The cancer genetics program was generally well-received by patients.
• High satisfaction suggests perceived value in risk assessment and counseling.
• Poor recall of numerical risk highlights a need to enhance risk communication strategies.