[COLIBRI: Improving clinical practice and producing relevant scientific data].

Area of Science:

• Pulmonology
• Digital Health
• Real-World Data

Background:

• Chronic obstructive pulmonary disease (COPD) management requires comprehensive patient data.
• Existing data collection methods may not capture the full spectrum of COPD phenotypes.
• A francophone web portal, COLIBRI-COPD, was developed for pulmonologists.

Purpose of the Study:

• To describe the phenotype of COPD patients entered into the COLIBRI-COPD database.
• To assess the completeness and reliability of real-world data collected via a web portal.
• To identify variability in patient characteristics and management within established COPD severity stages.

Main Methods:

• Prospective data collection of 1079 COPD patients via the COLIBRI-COPD web portal.
• Phenotypic data included anthropometry, exposures, functional impairments, and validated questionnaires (MRC, CAT, HAD, etc.).
• Analysis of data completeness, reliability, and comparison of patient characteristics across GOLD stages.

Main Results:

• High completeness for key data items in the initial 1079 patients.
• Significant variability observed among patients with the same GOLD stage in exacerbation incidence, anxiety-depression, diabetes, and medication prescriptions.
• Data quality is influenced by web tool usability and practitioner self-assessment.

Conclusions:

• Real-world data collection through the COLIBRI-COPD portal provides a reliable database for longitudinal COPD research.
• Significant patient heterogeneity exists even within the same GOLD stage, underscoring the need for individualized treatment strategies.
• The usability of the web tool is crucial for ensuring data quality and facilitating practitioner engagement.