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Charting Phelan's 'To Suffer a Sea Change'.
Megan Winkelman1, Jacqueline Ng2, Audrey Shafer3
1Berkeley, California, USA.
Medical Humanities
|July 17, 2015
Summary
This study explores how medical records and patient narratives, like Peggy Phelan's glaucoma pathography, can enrich disease understanding. Analyzing their dialogue reveals communication insights and a deeper appreciation for patient experiences in healthcare.
Area of Science:
- Medical Humanities
- Ophthalmology
- Health Communication
Background:
- Physicians often view medical records as mere documentation.
- Patient narratives offer rich, personal accounts of illness experiences.
Purpose of the Study:
- To explore the intersection of medical records and patient pathography.
- To reconstruct a medical record from a narrative to understand disease portrayal.
- To analyze the dialogue between clinical documentation and personal illness accounts.
Main Methods:
- Extracting medical information from Peggy Phelan's glaucoma pathography, 'To Suffer a Sea Change'.
- An ophthalmologist reconstructed progress notes based on the narrative.
- Comparing and analyzing the reconstructed medical record with the original pathography.
Main Results:
- The reconstruction highlights how narrative elements can inform clinical documentation.
- Divergences between the texts reveal communication challenges.
- The collaborative dialogue between the pathography and medical record offers a richer understanding of glaucoma.
Conclusions:
- Integrating patient narratives with medical records can enhance the study of disease.
- Appreciating the dialogue between clinical and personal accounts improves communication in healthcare.
- This approach offers a more nuanced view of patient experience and disease progression.
Keywords:
Surgery
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