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Igniting Transformative Change in Dementia Care Through Research-based Drama.
Sherry L Dupuis1, Gail J Mitchell2, Christine M Jonas-Simpson2
1Department of Recreation and Leisure Studies, Faculty of Applied Health Sciences, University of Waterloo, Waterloo, Ontario, Canada. sldupuis@uwaterloo.ca.
The Gerontologist
|July 18, 2015
Summary
Engaging with research-based drama transformed family members (FMs) and health care professionals (HCPs) caring for persons with dementia. The arts fostered compassion, awareness, and courage, improving dementia care practices.
Area of Science:
- Arts-based research
- Dementia care
- Knowledge mobilization
Background:
- Limited research exists on the long-term impact of arts engagement.
- Arts interventions can offer novel approaches to understanding complex health experiences.
Purpose of the Study:
- To examine changes in perceptions and actions of family members (FMs) and health care professionals (HCPs) after experiencing a dementia-focused drama.
- To explore the shorter- (6 weeks) and longer-term (12 months) effects of the drama 'I'm Still Here' on personal transformation.
Main Methods:
- Longitudinal study using phenomenological approach.
- Follow-up telephone interviews conducted at 6 weeks and 12 months post-drama attendance.
Main Results:
- Engagement with the drama led to phenomenological shifts.
- Four key themes emerged: compassion from witnessing suffering, expanded awareness, increased confidence and courage, and envisioning new possibilities.
Conclusions:
- Research-based drama can be a powerful tool for knowledge mobilization in dementia care.
- The arts can illuminate realizations and transform practices, contributing to a cultural shift in dementia care.
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