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[Social representations of illness among people with chronic kidney disease]
Caroline Gonçalves Pustiglione Campos1, Maria de Fátima Mantovani2, Maria Elisa Brum do Nascimento3
1Department of Nursing and Public Health, Universidade Estadual de Ponta Grossa, Ponta Grossa, Paraná, Brazil.
Objective:
To describe the social representations of illness among people with chronic kidney disease undergoing haemodialysis.
Method:
Descriptive, qualitative research, anchored on the social representations theory. This study was conducted in the municipality of Ponta Grossa, Paraná State, Brazil, with 23 adults with chronic kidney disease. Data were collection between February and November 2012 by means of a semi-structured interview, and analyzed using Content Analysis.
Results:
The interviews led to the categories "the meaning of kidney disease": awareness of finitude, and "survival": the visible with chronic kidney disease. The representation of illness unveiled a difference and interruption in life projects, and haemodialysis meant loss of freedom, imprisonment and stigma.
Conclusion:
Family ties and the individuals´ social role are determining representations for healthcare.
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