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ReCAP: Gaps in Insurance Coverage for Pediatric Patients With Acute Lymphoblastic Leukemia
Rochelle R Smits-Seemann1, Sapna Kaul2, Aimee O Hersh2
1University of Utah; Huntsman Cancer Institute, University of Utah; and Primary Children's Hospital, Salt Lake City, UT rochelle.smits@hci.utah.edu.
Insights
Gaps in health insurance during pediatric cancer treatment affected 12% of patients. Public insurance at diagnosis increased the risk of insurance gaps, highlighting the need for proactive insurance discussions.
Area of Science:
- Pediatric Oncology
- Health Services Research
- Health Insurance Policy
Background:
- Continuous health insurance is vital for effective pediatric healthcare.
- Insurance gaps in pediatric cancer care remain an understudied area.
Purpose of the Study:
- To evaluate the prevalence and predictors of health insurance gaps in pediatric patients undergoing acute lymphoblastic leukemia treatment.
- To identify demographic and clinical factors associated with insurance coverage disruptions.
Main Methods:
- Retrospective analysis of payer data for 380 pediatric acute lymphoblastic leukemia patients.
- Data collected from outpatient oncology encounters over the first two years of therapy (1998-2010).
- Logistic regression used to identify predictors of insurance gaps.
Main Results:
- 12% of patients experienced an insurance gap within the first two years of treatment.
- A significant trend of decreasing insurance gaps was observed annually from 1998 to 2010 (P = .001).
- Public insurance at diagnosis was associated with a four-fold increased likelihood of insurance gaps compared to private insurance (P < .001).
Conclusions:
- Insurance gaps are a notable concern during pediatric cancer treatment.
- Discussing insurance status at diagnosis and throughout treatment is crucial to mitigate financial burdens.
- Further research is needed on the impact of insurance gaps on patient outcomes and post-healthcare reform.
Purpose:
Continuous insurance coverage is an important component of effective health care. Evaluation of insurance gaps in pediatric cancer care is an understudied area.
Methods:
We conducted a retrospective analysis of payer data from outpatient oncology encounters at Primary Children's Hospital (Salt Lake City, UT) over the first 2 years of therapy for pediatric patients with acute lymphoblastic leukemia diagnosed from 1998 to 2010 (N = 380). Using logistic regression, we evaluated demographic and clinical predictors (age at diagnosis, sex, ethnicity, high/standard acute lymphoblastic leukemia risk, and rural/urban county of residence at diagnosis) of a gap in health insurance.
Results:
The median age at diagnosis was 4 years (interquartile range, 3 to 8 years), and 172 patients (45%) were girls. In the first 2 years of treatment, 45 patients (12%) experienced a gap in health insurance. The odds of having a gap in insurance coverage decreased by 16% each year from 1998 to 2010 (odds ratio, 0.84; 95% CI, 0.76 to 0.93; test for trend, P = .001). Public insurance at diagnosis was associated with a four-fold increased likelihood of experiencing an insurance gap (odds ratio, 4.09; 95% CI, 1.98 to 8.44; P < .001) compared with patients with private insurance at diagnosis.
Conclusion:
Gaps in insurance coverage during pediatric cancer treatment are not uncommon, which highlights the importance of discussing insurance status at diagnosis and throughout a patient's treatment course to help patients and their families prepare for any changes and avoid unnecessary financial burden. Future research should focus on examining the effect of insurance gaps on patient outcomes and evaluating likelihood of gaps in insurance after health care reform.
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