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Using virtual worlds for patient and public engagement.
Michael J Taylor1, Meerat Kaur2, Uvarshi Sharma2
1Department of Surgery and Cancer, Imperial College London ; NIHR CLAHRC for Northwest London.
Virtual worlds (VW) offer a promising platform for patient engagement in healthcare research, especially for individuals with mobility or communication challenges. Despite technical hurdles, VWs show potential for future involvement, particularly in peer-led support for long-term conditions.
Area of Science:
- Healthcare research methodology
- Digital health engagement
- Patient and public involvement
Background:
- Patient and public involvement is crucial in healthcare research and development.
- Traditional engagement methods can be challenging for patients with mobility or communication impairments.
- Virtual worlds (VW) present an alternative digital environment for interaction.
Purpose of the Study:
- To investigate the feasibility of using virtual worlds (VW), specifically Second Life, as a method for patient and public involvement in healthcare research.
- To explore patient perspectives on using VW for engagement, particularly those with long-term conditions.
Main Methods:
- A two-stage study involving participant introduction to Second Life and virtual world (VW) focus group discussions (FGD).
- Data collection through interviews and questionnaires with patients regarding their VW experience.
- A virtual FGD was conducted in Second Life with patients, researchers, and a healthcare professional.
Main Results:
- Virtual worlds (VW) were recognized as a valuable platform for patient engagement, especially for those with chronic conditions affecting mobility and communication.
- Technical issues and user inexperience were identified as potential barriers to VW engagement.
- Continuous training and support can mitigate these barriers, enhancing the effectiveness of virtual world platforms.
Conclusions:
- The study established the feasibility of using virtual worlds (VW) for patient focus group discussions (FGD).
- VW demonstrate potential for future patient engagement in healthcare, particularly for peer support and involving individuals with specific long-term conditions.
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