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Advance Care Discussions: Pediatric Clinician Preparedness and Practices
Amy Sanderson1, Amber M Hall1, Joanne Wolfe2
1Department of Anesthesiology, Perioperative & Pain Medicine, Boston Children's Hospital, Boston, Massachusetts, USA.
Pediatric clinicians feel prepared for advance care discussions (ACD), but their practices often don't align with best practices. More training and support are needed to improve ACD skills for children with life-threatening conditions.
Area of Science:
- Pediatric Palliative Care
- Clinical Communication
- Medical Ethics
Background:
- Limited data exist on clinician readiness for advance care discussions (ACD) in children with life-threatening conditions.
- Understanding current practices and preparedness is crucial for improving pediatric end-of-life care.
Purpose of the Study:
- To assess pediatric clinician preparedness for ACD.
- To examine the practices and challenges associated with ACD in pediatric care.
Main Methods:
- A survey was administered to pediatric physicians and nurses.
- The survey assessed clinician attitudes, self-perceived preparedness, and behaviors regarding ACD.
Main Results:
- 75% of clinicians felt prepared for ACD, particularly in expressing empathy and discussing goals of care.
- Clinicians reported less preparedness in discussing resuscitation status and conducting family conferences.
- Commonly discussed topics included parental understanding of illness and prognosis, while patient-specific hopes and beliefs were less frequently addressed.
- A significant portion of clinicians found caring for patients with poor prognoses depressing, especially less experienced ones.
Conclusions:
- While many clinicians feel prepared for ACD, their practices may not meet expert recommendations.
- Educational interventions and enhanced clinician support are recommended to improve ACD preparedness and skills.
- Addressing clinician attitudes, knowledge, and behaviors is key to optimizing ACD for critically ill children.
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