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A home-based comprehensive care model in patients with Multiple Sclerosis: A study pre-protocol.

Lufei Young1, Kathleen Healey2, Mary Charlton3

  • 1College of Nursing, University of Nebraska Medical Center, Lincoln, Nebraska, USA.

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|December 18, 2015
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Summary

This study introduces a home-based comprehensive care model for progressive multiple sclerosis (MS) patients. The goal is to improve quality of life and reduce complications and healthcare use through coordinated, patient-centered support.

Keywords:
disabilityhealthcare utilizationhome-based caremultiple sclerosissymptom managementvalue-based care

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Area of Science:

  • Neurology
  • Health Services Research
  • Gerontology

Background:

  • Disability in multiple sclerosis (MS) significantly impacts patient quality of life, caregiver burden, and healthcare utilization.
  • Current healthcare models inadequately address the complex needs of progressive MS patients, leading to preventable complications and distress.
  • A novel home-based comprehensive care model is proposed to mitigate these challenges.

Purpose of the Study:

  • To describe the study design and methods for implementing and evaluating a home-based comprehensive care program for progressive MS.
  • To assess the feasibility and effectiveness of the proposed intervention over 24 months.

Main Methods:

  • A 24-month, randomized controlled trial evaluating a home-based, patient-centered comprehensive care program.
  • A transdisciplinary team led by an MS-Comprehensivist will manage the intervention.
  • Fifty MS patients will be randomized to either the intervention group or the usual care group.

Main Results:

  • Hypothesized outcomes include fewer complications, improved quality of life, higher patient satisfaction, and reduced healthcare utilization in the intervention group.
  • The study will assess the feasibility and effectiveness of the home-based model.
  • Financial sustainability in various healthcare payment models will be evaluated.

Conclusions:

  • This is the first study to examine a home-based comprehensive care management program for progressive MS patients with disabilities.
  • Successful implementation could significantly improve care delivery, research, education, and practice for complex chronic conditions.
  • The model aims to provide high-quality, affordable care for individuals with severe, disabling neurological conditions.