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Ethics in Research01:56

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A Familiarization Protocol Facilitates the Participation of Children with ASD in Electrophysiological Research
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Developing a new justification for assent.

Amanda Sibley1,2, Andrew J Pollard3,4, Raymond Fitzpatrick5

  • 1Department of Paediatrics, University of Oxford, Oxford, UK. asibley2011@gmail.com.

BMC Medical Ethics
|January 13, 2016
PubMed
Summary
This summary is machine-generated.

The ethical basis for child assent in research is often misunderstood. This study proposes a new justification rooted in respecting parental roles and the child

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Area of Science:

  • Bioethics
  • Pediatric Research
  • Child Psychology

Background:

  • Current guidelines lack clarity on when and how to obtain assent from pediatric research participants.
  • The fundamental ethical justifications for assent are often misunderstood.
  • Common arguments for assent include children's rights, best interests, and developing autonomy.

Purpose of the Study:

  • To critically assess existing ethical arguments for obtaining assent from pediatric research participants.
  • To propose a novel, two-fold ethical justification for the assent process in pediatric research.
  • To clarify the researcher's obligations to both parents and children in the context of assent.

Main Methods:

  • Critical analysis of established ethical arguments for assent.
  • Development of a new ethical framework for pediatric assent.
  • Examination of researcher obligations in pediatric research settings.

Main Results:

  • Traditional justifications for assent (children's rights, best interests, autonomy) are deemed incomplete.
  • A new justification for assent is proposed, emphasizing respect for the parent's pedagogical role and the child's moral worth.
  • The value of assent lies in soliciting the child's views, not necessarily in their final decision.

Conclusions:

  • The ethical grounding for involving children in decision-making is not solely based on rights, best interests, or autonomy.
  • Assent serves a pedagogical function, teaching children about decision-making processes.
  • Researchers have obligations to both parents and children, with engagement stemming from the child's inherent moral worth.