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Stakeholder Engagement in a Patient-Reported Outcomes (PRO) Measure Implementation: A Report from the SAFTINet

Bethany M Kwan1, Marion R Sills2, Deborah Graham2

  • 1From the Departments of Family Medicine (BMK), Pediatrics (MRS), and Emergency Medicine (MRS), and Divisions of Cardiology (KEH) and General Internal Medicine (LMS), Department of Medicine, and Adult and Child Consortium for Health Outcomes Research and Delivery Science (ACCORDS) (BMK, MRS, MKH, DLF, KEH, LMS), University of Colorado School of Medicine, Aurora, CO; Children's Hospital Colorado, Aurora, CO (MRS); The DARTNet Institute, Aurora, CO (DG); Department of Biostatistics and Informatics, Colorado School of Public Health, Aurora, CO (DLF); Metro Community Provider Network, Englewood, CO (AK); Salud Family Health Centers, Fort Lupton, CO (MdJD-P). bethany.kwan@ucdenver.edu.

Journal of the American Board of Family Medicine : JABFM
|January 16, 2016
PubMed

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Summary

Stakeholder engagement facilitated the implementation of patient-reported outcome (PRO) measures in clinical practice. This approach successfully aligned the needs of both researchers and healthcare providers, improving PRO data collection.

Area of Science:

  • Health Services Research
  • Clinical Informatics
  • Patient Outcomes

Background:

  • Patient-reported outcome (PRO) measures are valuable in clinical practice and research.
  • Conflicting priorities can hinder PRO implementation.
  • Stakeholder engagement can align diverse perspectives for effective PRO integration.

Purpose of the Study:

  • To demonstrate the utility of stakeholder engagement in implementing PRO measures.
  • To align research and clinical practice stakeholder perspectives on PROs.

Main Methods:

  • Engaged researchers and clinical practice representatives from a practice-based research network (SAFTINet).
  • Utilized iterative analysis, deliberation, and decision-making for PRO implementation.
  • Focused on implementing the Medication Adherence Survey (MAS) for hypertension/hyperlipidemia patients.
Keywords:
Comparative Effectiveness ResearchHypertensionMedication AdherencePatient Outcome AssessmentPatient-centered Outcomes ResearchPractice-based Research

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Main Results:

  • 89% of practices (40/45) implemented the MAS within 9 months, collecting 3,247 surveys.
  • Facilitators included EHR integration, existing workflows, and engaged leadership.
  • Successful integration into health risk appraisals and care coordinator roles was noted.

Conclusions:

  • Stakeholder engagement effectively promoted PRO measure implementation in clinical settings.
  • The approach balanced the needs of researchers and clinical practice stakeholders.
  • Opportunities exist to enhance PRO data collection infrastructure within practice-based research networks.