Related Experiment Videos
Here are (almost all) the data: the evolution of the US Renal Data System
C R Blagg1, R R Bovbjerg, S C FitzSimmons
1Northwest Kidney Center, seattle, WA 98122.
Summary
The US Renal Data System (USRDS) was established in 1988 to create a comprehensive renal data system in the United States. This system addresses the historical lack of centralized data collection for end-stage renal disease (ESRD).
Area of Science:
- Nephrology
- Public Health
- Health Informatics
Background:
- The United States historically lacked a comprehensive renal data system comparable to international registries.
- The Medicare End-Stage Renal Disease Program highlighted the need for better data collection.
- Existing data collection efforts were fragmented before the USRDS.
Purpose of the Study:
- To review the historical development of end-stage renal disease (ESRD) data collection in the US.
- To discuss challenges and lessons learned in establishing a national renal data system.
- To outline the objectives of the newly established US Renal Data System (USRDS).
Main Methods:
- Historical review of ESRD data collection activities and registries.
- Analysis of the development and implementation of the USRDS.
- Discussion of challenges encountered and lessons learned.
Main Results:
- The US Renal Data System (USRDS) was established in May 1988.
- The establishment of USRDS aimed to fill a critical gap in national renal data.
- The development process involved addressing historical fragmentation and identifying key objectives.
Conclusions:
- The USRDS represents a significant step towards comprehensive renal data collection in the US.
- Lessons learned from past data collection efforts informed the structure and objectives of the USRDS.
- The system is anticipated to improve understanding and management of end-stage renal disease.