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Published on: February 2, 2020
Children's experiences about a structured assessment of health-related quality of life during a patient encounter
C Petersson1, K Huus1,2, K Åkesson1,3
1School of Health and Welfare, Research School of Health and Welfare, Jönköping University and The Jönköping Academy for Improvement of Health and welfare, CHILD Research Group, Jönköping, Sweden.
Insights
Structured health assessments empower children with chronic conditions, offering insights that motivate lifestyle changes and encourage open discussions about their health outcomes with healthcare providers.
Area of Science:
- Pediatric Health
- Quality of Life Research
- Chronic Condition Management
Background:
- Pediatric chronic condition care often overlooks children's lived experiences and daily functioning.
- Focus tends to be on condition-specific issues, not holistic well-being.
Purpose of the Study:
- To explore children's perspectives on structured health-related quality of life assessments during patient encounters.
- To understand how these assessments impact children's engagement with their health.
Main Methods:
- Qualitative explorative design involving interviews with 25 children (10-17 years).
- Utilized the DISABKIDS Chronic Generic Measure (DCGM-37) questionnaire.
- Interviews conducted post-consultation at pediatric outpatient clinics; data analyzed via qualitative content analysis.
Main Results:
- Children reported gaining valuable health insights from the assessment.
- The assessment motivated children to consider and implement lifestyle modifications.
- Discussing outcomes during the assessment encouraged children and fostered engagement.
Conclusions:
- Health-related quality of life assessments can enhance children's understanding of their health status.
- These assessments encourage children with chronic conditions to actively participate in discussions about their health outcomes with clinicians.
Background:
It has been stated that care for children with chronic health conditions tends to focus on condition-specific issues rather than how these children experience their health and everyday life functioning.
Aim:
The aim of this study was to explore children's experiences about a structured assessment of health-related quality of life applied during a patient encounter.
Methods:
Prior to the start of the study, a clinical intervention based on the questionnaire DISABKIDS Chronic Generic Measure (DCGM-37) was performed. A qualitative explorative design was chosen, and 25 children between 10-17 years of age were interviewed after the consultation at four different paediatric outpatient clinics. Data were analysed according to qualitative content analysis.
Results:
The results were twofold: children experienced that the assessment was providing them with insights about their health, which motivated them to make lifestyle changes. When outcomes were discussed and requested, the children felt encouraged.
Conclusions:
The use of an assessment of health-related quality of life may promote insights about health and encourage children with chronic health conditions to discuss their outcomes with healthcare professionals.
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