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Pain Intensity and Misconceptions Among Hospice Patients With Cancer and Their Caregivers: Status After 2 Decades
Diana J Wilkie1,2, M O Ezenwa1,2, Y Yao1,2
11 Department of Biobehavioral Nursing Science, College of Nursing, University of Florida, Gainesville, FL, USA.
Barriers to pain management in hospice cancer patients are significant, with patients and caregivers concerned about pain meaning disease progression and constipation. These barriers disproportionately affect Hispanic patients, highlighting a need for culturally sensitive care.
Area of Science:
- Palliative Care
- Oncology Nursing
- Pain Management
Background:
- Limited evidence exists on pain management barriers and their impact on cancer patients in hospice.
- Understanding these barriers is crucial for improving pain outcomes in end-of-life cancer care.
Purpose of the Study:
- To identify barriers to pain management reported by hospice cancer patients and their caregivers.
- To explore the relationship between these barriers, demographic characteristics, and patient pain intensity.
Main Methods:
- Cross-sectional study using baseline data from a randomized clinical trial.
- Internet-enabled tablets used for validated measures of pain intensity and Barriers Questionnaire (BQ-13).
- Data collected from patient and lay caregiver dyads in home hospice care.
Main Results:
- 'Pain means disease progression' and 'constipation' were top concerns for both patients and caregivers.
- Caregivers also identified 'addiction,' 'embarrassing behaviors,' and 'confusion' as high concerns.
- Mean barrier scores were high and similar between patients and caregivers, not correlating with pain intensity.
- Hispanic patients reported higher barrier scores than non-Hispanic patients.
Conclusions:
- Pain management barriers are significant in hospice cancer care, particularly related to disease progression fears and constipation.
- Culturally tailored interventions are needed, especially for minority populations like Hispanic patients.
- Findings underscore the importance of addressing patient and caregiver perceptions in hospice pain management.
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