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Participatory Genomic Testing as an Educational Experience.

Kathryn B Garber1, Katherine M Hyland2, Shoumita Dasgupta3

  • 1Department of Human Genetics, Emory University School of Medicine, Atlanta, GA, USA.

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|April 28, 2016
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Summary
This summary is machine-generated.

Participatory genomic testing in education offers hands-on learning but raises ethical questions. This study reviews strategies for managing these concerns and their impact on student understanding of genomics.

Keywords:
direct to consumergenomic medicinemedical educationpersonal genomic testingprecision medicine

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Area of Science:

  • Genomic Education
  • Bioethics
  • Experiential Learning

Background:

  • Institutions are integrating participatory genomic testing into educational programs.
  • This pedagogical approach aims to enhance student engagement through hands-on experience.
  • The incorporation of genomic testing in curricula has prompted ethical considerations.

Purpose of the Study:

  • To summarize effective strategies for addressing ethical concerns related to participatory genomic testing in academic settings.
  • To review existing evidence on how this experiential learning method influences students' knowledge of genomics.
  • To assess the impact of participatory genomic testing on students' attitudes toward the field of genomics.

Main Methods:

  • Literature review of studies on participatory genomic testing in educational contexts.
  • Analysis of reported ethical concerns and management strategies.
  • Synthesis of evidence evaluating the educational outcomes, including knowledge and attitudes.

Main Results:

  • Identified common ethical concerns associated with student participation in genomic testing.
  • Documented various strategies employed by institutions to mitigate these ethical issues.
  • Evidence suggests a positive influence on student knowledge and attitudes towards genomics.

Conclusions:

  • Participatory genomic testing can be effectively implemented in educational curricula with appropriate ethical oversight.
  • Experiential learning through genomic testing enhances student comprehension and fosters positive attitudes in the field.
  • Further research is warranted to explore long-term impacts and refine ethical guidelines.