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Patient-Reported Outcome Measures in Systemic Sclerosis (Scleroderma)
Russell E Pellar1, Theresa M Tingey1, Janet Elizabeth Pope2
1Faculty of Medicine, SJHC, Schulich School of Medicine and Dentistry, University of Western Ontario, c/o Rheumatology, 268 Grosvenor Street, London, Ontario N6A 4V2, Canada.
Abstract:
Scleroderma (systemic sclerosis) is a rare autoimmune connective tissue disease that can damage multiple organs and reduce quality of life. Patient-reported outcome measures capture the patient's perspective. Some measures are specific to systemic sclerosis and others are general. Patient-reported outcomes in systemic sclerosis are important to aid in understanding the impact of systemic sclerosis on patients.
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