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Related Experiment Video

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Examining Changes in HRV and Emotion Following Artmaking with Three Different Art Materials
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Re-claiming citizenship through the arts.

Sherry L Dupuis1, Pia Kontos2, Gail Mitchell3

  • 1Department of Recreation and Leisure Studies and Partnerships in Dementia Care Alliance, University of Waterloo, Waterloo, Canada sldupuis@uwaterloo.ca.

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Summary

This study challenges the "doomed" narrative of dementia by using arts-based methods. It shows how art can combat stigma and restore citizenship rights for people with dementia.

Keywords:
critical arts-based researchdementiaembodimentnarrative citizenshiprelationality

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Area of Science:

  • Gerontology
  • Social Sciences
  • Arts-Based Research

Background:

  • Dominant healthcare narratives portray persons with dementia as "doomed" and "socially dead."
  • This tragedy meta-narrative perpetuates misunderstandings, stigma, and discrimination against individuals with dementia.
  • Persons with dementia face barriers to exercising their citizenship rights due to prevailing discourse.

Purpose of the Study:

  • To interrogate the dominant tragedy discourse surrounding dementia.
  • To construct an alternative, empowering narrative of dementia through arts-based methods.
  • To explore the concept of narrative citizenship for persons living with dementia.

Main Methods:

  • A community-based, critical arts-based project involving persons with dementia, family members, artists, and researchers.
  • Interrogation of the tragedy discourse through collaborative artistic expression.
  • Construction of alternative narratives of dementia utilizing visual and performance arts.

Main Results:

  • The arts created transformative spaces for challenging assumptions about dementia.
  • The project fostered critical reflection and envisioned new possibilities for support and relationships.
  • An alternative narrative was constructed, supporting the reclamation of citizenship for persons with dementia.

Conclusions:

  • Arts-based initiatives can effectively challenge negative dementia discourse and reduce stigma.
  • This approach promotes narrative citizenship, empowering individuals with dementia.
  • Fostering relational citizenship through arts-based methods benefits all involved.