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Investing in Uncertainty: Young Adults with Life-Limiting Conditions Achieving Their Developmental Goals
Karen A Cook1,2, Susan M Jack2, Hal Siden3
11 Faculty of Health Disciplines, Athabasca University , Athabasca, Alberta, Canada .
Journal of Palliative Medicine
|May 24, 2016
Summary
Young adults (YAs) with life-limiting conditions (LLCs) face significant hurdles in achieving life goals due to abbreviated lifespans. Supportive services are crucial for navigating challenges and enabling YAs with LLCs to reach their aspirations.
Area of Science:
- Pediatric care and technology advancements
- Young adult (YA) health and development
- Life-limiting conditions (LLCs) in young adults
Background:
- Increasing survival rates for young adults with life-limiting conditions (LLCs).
- Limited life expectancy for YAs with LLCs beyond their first decade of adulthood.
- Significant efforts required for YAs with LLCs to achieve goals within abbreviated lifespans.
Purpose of the Study:
- To explore the experiences and aspirations of YAs with LLCs in achieving their goals.
- To understand the impact of living with uncertainty on developmental goal attainment for YAs with LLCs.
Main Methods:
- Part of a larger descriptive study.
- Utilized an innovative bulletin board focus group methodology.
- Examined the life experiences of YAs with LLCs.
Main Results:
- YAs with LLCs share universal aspirations and goals.
- Some YAs with LLCs successfully navigated system barriers, while others faced lost opportunities.
- Availability of coordinated, responsive resources facilitated personal life investments for YAs with LLCs.
Conclusions:
- This study amplifies the voices of YAs with LLCs, highlighting their challenges.
- Monumental hurdles exist for YAs with LLCs in achieving their goals.
- A palliative care approach can reduce hardships and support YA goals.
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