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Sternocostoclavicular Hyperostosis: An Ill-Recognized Disease
Bolette Roed1,2, Tatiana Kristensen3, Søren Thorsen4
1Department of Diagnostic Imaging, Nordsjællands Hospital Hillerød, Copenhagen University Hospital, Dyrehavevej 29, 3400 Hillerød, Denmark. bolette@boletteroed.com.
Sternocostoclavicular hyperostosis (SCCH), a rare condition often part of SAPHO syndrome, causes progressive bone and joint changes. This case highlights the critical need for early SCCH diagnosis to prevent prolonged symptoms and misdiagnosis.
Area of Science:
- Rheumatology
- Radiology
- Dermatology
Background:
- Sternocostoclavicular hyperostosis (SCCH) is an underdiagnosed condition.
- SCCH is frequently associated with synovitis, acne, pustulosis, hyperostosis, and osteitis (SAPHO) syndrome.
- The disease manifests as chronic, non-malignant inflammation and bone overgrowth in the sternocostoclavicular region.
Purpose of the Study:
- To report a case of isolated sternocostoclavicular hyperostosis (SCCH).
- To emphasize the diagnostic challenges and delays associated with SCCH.
- To underscore the importance of early recognition and diagnosis of SCCH.
Main Methods:
- Case presentation of a patient with isolated SCCH.
- Radiographic assessment over a decade.
- Whole-body bone scintigraphy.
Main Results:
- Bilateral SCCH developed over 14 years.
- Diagnosis was significantly delayed despite multiple examinations.
- Bone scintigraphy supported the diagnosis of SCCH.
Conclusions:
- Early diagnosis of SCCH is crucial.
- Delayed diagnosis can lead to prolonged symptoms and disease progression.
- Increased awareness of SCCH is needed among clinicians.
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