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School Performance and Disease Interference in Adolescents with Sickle Cell Disease
Lori E Crosby1, Naomi E Joffe1, Mary Kay Irwin2
1Cincinnati Children's Hospital Medical Center & University of Cincinnati College of Medicine.
Sickle cell disease (SCD) significantly impacts school performance in adolescents, with over 60% reporting interference. Females with SCD experience greater schooling challenges than males, highlighting the need for tailored support.
Area of Science:
- Pediatric Hematology
- Neuropsychology
- Educational Psychology
Background:
- Sickle cell disease (SCD) is linked to neuropsychological issues affecting academic achievement in adolescents.
- Understanding SCD's impact on education is crucial for developing effective interventions.
Purpose of the Study:
- To assess school performance perceptions, SCD interference, and educational support acceptability in adolescents with SCD.
- To identify demographic risk factors associated with school performance and SCD interference.
Main Methods:
- A cross-sectional study involving 30 adolescents (aged 12-20) with SCD.
- Participants completed questionnaires on demographics, school performance, and SCD interference.
Main Results:
- Over 60% of participants reported that SCD interfered with their school performance.
- Approximately 37% received special education services.
- Females reported a greater impact of SCD on schooling than males (p < .05).
Conclusions:
- SCD poses significant challenges to adolescent educational achievement.
- Demographic factors, particularly sex, are associated with the level of interference.
- Individualized health and educational plans are essential for adolescents with SCD.
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