How to Work with Vocabulary Correctly, Exemplified with Gender Coding?
Frank Oemig1, Bernd Blobel2, Peter Geibel3
1Deutsche Telekom Healthcare and Security Solutions GmbH, Mülheim, Germany.
Studies in Health Technology and Informatics
|September 1, 2016
Summary
Data exchange standards often use simple code lists for vocabulary, leading to interpretation issues. This study analyzes gender data codes and recommends better management of code systems for improved accuracy.
Area of Science:
- Health Informatics
- Data Standards Management
Background:
- Data exchange standards often employ simple code lists for vocabulary representation.
- This approach frequently lacks proper concept descriptions and domain identification, leading to ambiguity and misinterpretation.
Purpose of the Study:
- To analyze the implementation of code systems within popular data exchange standards.
- To identify and recommend improvements for handling and managing code systems, using the gender use case as an example.
Main Methods:
- Analysis of code system usage in selected data exchange standards.
- Case study focusing on the representation of gender data.
Main Results:
- Identified widespread use of simplistic code lists without adequate definitions or domain specification.
- Observed inconsistencies and potential for misinterpretation in gender data representation across standards.
Conclusions:
- Current practices in managing code systems within data exchange standards are often inadequate.
- Recommendations are provided for enhancing the definition, domain identification, and overall management of code systems for greater data integrity.
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