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Health and Big Data: An Ethical Framework for Health Information Collection by Corporate Wellness Programs
Ifeoma Ajunwa1, Kate Crawford1, Joel S Ford1
1Ifeoma Ajunwa, J.D., Ph.D., is an Assistant Professor of Law at the University of the District of Columbia School of Law. She holds a J.D. from the University of San Francisco School of Law (San Francisco, CA) and a Ph.D. in Sociology from Columbia University in the City of New York. Kate Crawford, Ph.D., is a Principal Researcher at Microsoft Research (Social Media Collective), a Visiting Professor at the MIT Center for Civic Media, a Senior Fellow at the Information Law Institute at NYU, and an Associate Professor in the Journalism and Media Research Centre at the University of New South Wales. She holds a Ph.D. from the University of Sydney (Sydney, Australia). Joel S. Ford, M.D., is an internal medicine resident at Inova Fairfax Hospital in Falls Church, VA. He holds an M.S. in Mechanical Engineering from Stanford University (Palo Alto, CA) and an M.D. from Case Western Reserve University (Cleveland, Ohio).
Abstract:
This essay details the resurgence of wellness program as employed by large corporations with the aim of reducing healthcare costs. The essay narrows in on a discussion of how Big Data collection practices are being utilized in wellness programs and the potential negative impact on the worker in regards to privacy and employment discrimination. The essay offers an ethical framework to be adopted by wellness program vendors in order to conduct wellness programs that would achieve cost-saving goals without undue burdens on the worker. The essay also offers some innovative approaches to wellness that may well better serve the goals of healthcare cost reduction.
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