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Published on: June 20, 2020
Children with medical complexity: creating a framework for care based on the International Classification of
Laurie Glader1, Jim Plews-Ogan2, Rishi Agrawal3
1Harvard Medical School, Boston Children's Hospital, Boston, MA, USA. laurie.glader@childrens.harvard.edu.
Insights
Children with medical complexity (CMC) require specialized care. A new framework, based on the International Classification of Function, Disability and Health, can guide professional training and improve care delivery for these children.
Area of Science:
- Pediatric Healthcare
- Health Services Research
- Rehabilitation Medicine
Background:
- Children with medical complexity (CMC) represent a growing pediatric population with severe chronic conditions and significant needs.
- CMC account for a disproportionate amount of healthcare costs and resource utilization.
- Existing complex care delivery models lack comprehensive guidance for professional training.
Purpose of the Study:
- To propose a new analytical framework for understanding and addressing the needs of CMC.
- To guide the development of effective training programs for healthcare professionals serving CMC.
- To inform improvements in care delivery and potentially reduce costs for this population.
Main Methods:
- The proposed framework is based on the International Classification of Function, Disability and Health (ICF).
- The framework is augmented with additional areas of need specific to CMC.
- This approach facilitates analysis and discussion of care requirements.
Main Results:
- The framework identifies necessary professional team expertise for CMC care.
- It provides a structure for improving care quality and provider training.
- Potential for cost reduction through optimized care practices.
Conclusions:
- A novel framework, grounded in ICF principles, is presented for CMC care.
- This framework supports targeted professional training and care enhancement.
- It offers a pathway to more efficient and effective healthcare delivery for children with medical complexity.
Abstract:
Children with medical complexity (CMC) comprise a growing sector of the pediatric population. They are characterized by having severe chronic multiple system conditions, functional limitations, and family needs. While CMC comprise 0.4% to 0.7% of children, they have high healthcare costs and resource utilization, and are thus a key population of interest in health reform efforts. Despite the growth in the development of complex care delivery models, there is little available information to guide the training of diverse professionals in the provision of care that CMC and their families need. We propose a new framework for analysis and discussion based on the components of the International Classification of Function, Disability and Health, with augmentation of further areas of common need identified in this unique population of children. This framework can be used to delineate necessary professional team areas of expertise, guide improvement in care and provider training, and, potentially, to reduce cost as best practices for care are developed and researched.
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