Children with medical complexity: creating a framework for care based on the International Classification of

Laurie Glader1, Jim Plews-Ogan2, Rishi Agrawal3

  • 1Harvard Medical School, Boston Children's Hospital, Boston, MA, USA. laurie.glader@childrens.harvard.edu.

Insights

Children with medical complexity (CMC) require specialized care. A new framework, based on the International Classification of Function, Disability and Health, can guide professional training and improve care delivery for these children.

Area of Science:

  • Pediatric Healthcare
  • Health Services Research
  • Rehabilitation Medicine

Background:

  • Children with medical complexity (CMC) represent a growing pediatric population with severe chronic conditions and significant needs.
  • CMC account for a disproportionate amount of healthcare costs and resource utilization.
  • Existing complex care delivery models lack comprehensive guidance for professional training.

Purpose of the Study:

  • To propose a new analytical framework for understanding and addressing the needs of CMC.
  • To guide the development of effective training programs for healthcare professionals serving CMC.
  • To inform improvements in care delivery and potentially reduce costs for this population.

Main Methods:

  • The proposed framework is based on the International Classification of Function, Disability and Health (ICF).
  • The framework is augmented with additional areas of need specific to CMC.
  • This approach facilitates analysis and discussion of care requirements.

Main Results:

  • The framework identifies necessary professional team expertise for CMC care.
  • It provides a structure for improving care quality and provider training.
  • Potential for cost reduction through optimized care practices.

Conclusions:

  • A novel framework, grounded in ICF principles, is presented for CMC care.
  • This framework supports targeted professional training and care enhancement.
  • It offers a pathway to more efficient and effective healthcare delivery for children with medical complexity.

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