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Children's palliative care now! Highlights from the second ICPCN conference on children's palliative care, 18-21 May
J Downing1, R Kiman2, S Boucher3
1International Children's Palliative Care Network, New Bond House, Bond Street, Bristol, UK; Palliative Care, Makerere University, PO Box 7072, Kampala, Uganda.
Insights
The second International Children's Palliative Care conference emphasized the urgent need for immediate access to pediatric palliative care services globally. Delegates committed to collaborative efforts to ensure all children receive essential palliative care now.
Area of Science:
- Palliative Care
- Pediatric Health
- Global Health Initiatives
Background:
- The International Children's Palliative Care Network convened its second international conference in Buenos Aires, Argentina.
- The conference theme, 'Children's Palliative Care…. Now!', underscored the critical urgency of providing these services.
Purpose of the Study:
- To address the current status and future needs of children's palliative care worldwide.
- To foster collaboration and knowledge sharing among global experts in pediatric palliative care.
- To advocate for the implementation of policies ensuring access to palliative care for all children.
Main Methods:
- A four-day international conference featuring six pre-conference workshops.
- Plenary, concurrent, and poster presentations covering diverse aspects of pediatric palliative care.
- A 'Big Debate' focused on ethical considerations in pediatric end-of-life care decision-making.
Main Results:
- 410 participants from 40 countries convened to discuss critical issues in children's palliative care.
- Presentations covered topics including pain management, genetics, perinatal care, parental experiences, and palliative care as a human right.
- The 'Commitment of Buenos Aires' was signed, urging governments to implement resolutions for universal access to pediatric palliative care.
Conclusions:
- There is a pressing and ongoing need to advance children's palliative care services globally.
- Collaboration among palliative care providers and governmental action are crucial for achieving universal access.
- The conference reinforced the imperative to provide pediatric palliative care services immediately to meet the needs of children and their families.
Abstract:
The International Children's Palliative Care Network held its second international conference on children's palliative care in Buenos Aires, Argentina, from the 18th-21st May 2016. The theme of the conference was 'Children's Palliative Care…. Now!' emphasising the need for palliative care for children now, as the future will be too late for many of them. Six pre-conference workshops were held, addressing issues connected to pain assessment and management, adolescent palliative care, ethics and decision-making, developing programmes, the basics of children's palliative care, and hidden aspects of children's palliative care. The conference brought together 410 participants from 40 countries. Plenary, concurrent, and poster presentations covered issues around the status of children's palliative care, genetics, perinatal and neonatal palliative care, the impact of children's palliative care and the experiences of parents and volunteers, palliative care as a human right, education in children's palliative care, managing complex pain in children, spiritual care and when to initiate palliative care. The 'Big Debate' explored issues around decision-making and end of life care in children, and gave participants the opportunity to explore a sensitive and thought provoking topic. At the end of the conference, delegates were urged to sign the Commitment of Buenos Aires which called for governments to implement the WHA resolution and ensure access to palliative care for neonates, children and their families, and also commits us as palliative care providers to share all that we can and collaborate with each other to achieve the global vision of palliative care for all children who need it. The conference highlighted the ongoing issues in children's palliative care and participants were continually challenged to ensure that children can access palliative care NOW.
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