Shared-decision-making and communication in paediatric palliative care within Uganda

Area of Science:

• Global Health
• Palliative Care Medicine
• Pediatrics

Background:

• Palliative care services in Uganda originated 30 years ago, with continuous development since.
• The Ministry of Health and Palliative Care Association of Uganda have been pivotal in advancing paediatric palliative care (PPC).

Purpose of the Study:

• To review the development and current state of paediatric palliative care services in Uganda.
• To explore factors influencing shared decision-making in Ugandan paediatric palliative care and identify future challenges and recommendations.

Main Methods:

• Review of existing literature and service provision models for paediatric palliative care in Uganda.
• Analysis of factors impacting decision-making within the Ugandan paediatric palliative care context.

Main Results:

• A range of PPC service providers, educational programs, and research initiatives are established across Uganda.
• PPC is delivered across the health system, catering to neonates through adolescents and young adults.
• While shared decision-making is recognized, literature on its application in Uganda is limited, with various factors influencing it.

Conclusions:

• Uganda has achieved substantial progress in paediatric palliative care provision.
• Efforts are ongoing to expand access to PPC for all children with palliative needs and their families.
• Addressing challenges and implementing recommendations is crucial for future service enhancement.