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Related Concept Videos

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Asthma: Pathogenesis and Management01:20

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Asthma-II: Pathophysiology and Classification01:26

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Related Experiment Video

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A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
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Using stakeholder engagement to develop a patient-centered pediatric asthma intervention.

Deborah Q Shelef1, Cynthia Rand2, Randi Streisand1

  • 1Center for Translational Science, Children's National Health System, Washington, DC.

The Journal of Allergy and Clinical Immunology
|October 17, 2016
PubMed
Summary

Engaging stakeholders in research design improves interventions for child asthma. This patient-centered approach ensures relevance and acceptability, potentially reducing health disparities.

Keywords:
Asthmainterventionpatient engagementprotocol developmentstakeholder engagementstress

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Area of Science:

  • Community-based participatory research
  • Health services research
  • Clinical trial design

Background:

  • Traditional clinical research often overlooks patient and provider preferences in study design.
  • Developing effective interventions requires incorporating the perspectives of those directly affected.

Purpose of the Study:

  • To describe the impact of stakeholder engagement on the design of a randomized trial for childhood asthma.
  • To refine an intervention aimed at improving child asthma outcomes by reducing parental stress.

Main Methods:

  • A year-long, multidimensional stakeholder engagement process was implemented.
  • Stakeholders included parents of children with asthma, community service providers, and national experts.
  • Iterative feedback guided the refinement of study design, outcomes, and intervention.

Main Results:

  • Stakeholder input was crucial in selecting patient-centered outcome measures.
  • Intervention content, format, and culturally appropriate language were refined through engagement.
  • The process resulted in a patient-centered study protocol.

Conclusions:

  • Stakeholder engagement is a valuable framework for developing relevant and acceptable health interventions.
  • This approach holds promise for improving health outcomes and reducing disparities, especially in underserved populations.