Related Experiment Video
Updated: Mar 13, 2026
Use of Micro X-ray Computed Tomography with Phosphotungstic Acid Preparation to Visualize Human Fibromuscular Tissue
Published on: September 5, 2019
Diagnosed and living with fibromuscular dysplasia: A qualitative inquiry
Sherry M Bumpus1, Christa Kuck2, Steven T Heidt2
1Eastern Michigan University, School of Nursing, Ypsilanti, MI, USA sherry.bumpus@emich.edu.
Abstract:
Fibromuscular dysplasia (FMD) is a vascular disorder about which little has been known until recently. Patients with FMD may suffer from hypertension, aneurysms, or strokes, as well as symptoms associated with local artery damage. As a result of advances in vascular medicine and growing outcomes registries, we now have a better understanding of the FMD disease process and epidemiology. Nevertheless, the consequences of FMD on patients' day-to-day experiences and mental health status are not well understood. The purpose of this study was to begin to identify and characterize the experiences of living with FMD from the perspective of the patient using qualitative inquiry. Interviews with 19 FMD patients (18 female, 1 male) were conducted, audio-recorded, transcribed verbatim, and content analyzed. Individuals with FMD reported a complex array of psychological, physical, emotional, social, and health care concerns, which may be underdiagnosed. Findings suggest new opportunities for enhancing patient care.
Insights
Fibromuscular dysplasia (FMD) significantly impacts patients' daily lives, causing psychological, physical, and social challenges. Understanding these patient experiences is crucial for improving care and addressing underdiagnosed concerns.
Area of Science:
- Vascular Medicine
- Patient-Reported Outcomes
- Qualitative Health Research
Background:
- Fibromuscular dysplasia (FMD) is a vascular disorder with increasing recognition of its disease process and epidemiology.
- While FMD's clinical manifestations like hypertension and stroke are known, its impact on patients' daily lives and mental health remains poorly understood.
Purpose of the Study:
- To identify and characterize the lived experiences of individuals with Fibromuscular dysplasia (FMD) from a patient perspective.
- To explore the multifaceted challenges faced by FMD patients in their daily lives.
Main Methods:
- Qualitative inquiry utilizing semi-structured interviews.
- Content analysis of verbatim transcripts from 19 FMD patients (18 female, 1 male).
Main Results:
- FMD patients reported a wide range of interconnected psychological, physical, emotional, and social concerns.
- These reported issues suggest potential underdiagnosis and highlight unmet patient needs.
- Patient experiences reveal significant health care concerns requiring attention.
Conclusions:
- The study underscores the complex and often underdiagnosed impact of FMD on patients' well-being.
- Findings provide a foundation for developing targeted interventions and enhancing patient-centered care strategies for FMD.
- Further research is needed to validate and address the identified patient concerns.
More Related Videos
08:42Ultrasound Assessment of Endothelial-Dependent Flow-Mediated Vasodilation of the Brachial Artery in Clinical Research
Published on: October 22, 2014
10:28Direct Reprogramming of Human Fibroblasts into Myoblasts to Investigate Therapies for Neuromuscular Disorders
Published on: April 3, 2021