Danish National Lymphoma Registry

Area of Science:

• Hematology
• Epidemiology
• Public Health

Background:

• The Danish National Lymphoma Registry (LYFO) was established to monitor and enhance the diagnostic evaluation and treatment quality for all lymphoma patients in Denmark.
• Initially a seminational database since 1982, LYFO became nationwide in 2000, encompassing all lymphoma cases.

Approach:

• The database collects extensive clinical and paraclinical data, including treatment details, through multiple patient forms.
• Key variables facilitate the calculation of six result quality indicators (e.g., mortality, survival rates) and three process quality indicators (e.g., time to treatment, diagnostic markers).

Key Points:

• LYFO registered approximately 23,000 patients between 1982 and 2014, with a median age of 65.
• The registry covers 42 different lymphoma subtypes classified by the World Health Organization.
• Data includes patient demographics, diagnosis, treatment, and outcomes, enabling detailed analysis.

Conclusions:

• LYFO serves as a vital nationwide resource for lymphoma patient information in Denmark.
• The registry supports epidemiological research, clinical follow-up, and administrative functions.
• Detailed data within LYFO is crucial for ongoing efforts to improve lymphoma care and outcomes.