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Translating sickle cell guidelines into practice for primary care providers with Project ECHO.

Lisa M Shook1, Christina B Farrell2, Karen A Kalinyak2

  • 1Department of Pediatrics, Cincinnati Comprehensive Sickle Cell Center, Division of Hematology, Cancer and Blood Diseases Institute, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA; lisa.shook@cchmc.org.

Medical Education Online
|November 27, 2016
PubMed
Summary

STORM TeleECHO trains primary care providers in evidence-based sickle cell disease (SCD) care using Project ECHO methodology. This intervention aims to improve care quality and outcomes for pediatric and young adult SCD patients in the Midwest.

Keywords:
continuing educationprovider educationsickle cell diseasetelementoring

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Area of Science:

  • Medical Education
  • Public Health
  • Hematology

Background:

  • Over 100,000 individuals in the US have sickle cell disease (SCD), with 15,000 in the Midwest.
  • Many patients face poor health outcomes due to limited access to primary care providers (PCPs) trained in evidence-based SCD care.
  • The Sickle Treatment and Outcomes Research in the Midwest (STORM) network aims to enhance SCD care and outcomes across six Midwestern states.

Purpose of the Study:

  • To evaluate the feasibility and acceptability of the STORM TeleECHO program, a novel intervention designed to train PCPs in evidence-based SCD care.
  • To assess the potential of Project ECHO methodology for scalable, high-impact PCP education in SCD management.
  • To improve the quality of care for pediatric and young adult patients with SCD in the Midwest.

Main Methods:

  • The STORM TeleECHO program utilizes Project ECHO's® telementoring model, featuring monthly video conferences with didactic and case-based sessions.
  • The curriculum is based on the National Heart, Lung and Blood Institute (NHLBI) evidence-based guidelines for SCD.
  • Network leads in each participating state are responsible for curriculum development and provider recruitment for monthly clinics.

Main Results:

  • Network leads are actively developing curricula and recruiting providers for the monthly STORM TeleECHO clinics.
  • Feasibility and acceptability are being assessed through monthly attendance and satisfaction data collection.
  • Future analysis will compare changes in self-reported provider knowledge, comfort, and practice patterns at 6 and 12 months post-participation.

Conclusions:

  • STORM TeleECHO demonstrates potential to increase adherence to NHLBI guidelines for SCD, including hydroxyurea use.
  • This intervention is expected to improve the quality of care and health outcomes for pediatric and young adult SCD patients.
  • The ECHO model shows promise for replication in other pediatric chronic illness management to enhance PCP confidence and evidence-based practice.