Comprehensive population-based determination of pediatric multiple sclerosis health care costs

Melissa A Wright1, E Kent Korgenski1, Tyler Bardsley1

  • 1School of Medicine (M.A.W.), Study Design and Biostatistics Center (T.B.), Department of Biostatistics (T.B.), and Department of Pediatrics, Division of Pediatric Neurology (J.L.B., M.S.C.), University of Utah; and Intermountain Healthcare (E.K.K.), Salt Lake City.

Insights

Pediatric multiple sclerosis (MS) care is costly, with a small group of patients driving expenses. Outpatient visits are the main cost driver, though inpatient stays are more expensive per event.

Area of Science:

  • Pediatric Neurology
  • Health Economics
  • Epidemiology

Background:

  • Pediatric multiple sclerosis (MS) represents a significant health challenge with substantial economic implications.
  • Understanding the financial burden is crucial for resource allocation and patient support.

Purpose of the Study:

  • To quantify the health care costs associated with pediatric multiple sclerosis (MS).
  • To identify key drivers of these costs within a defined population.

Main Methods:

  • Retrospective analysis of pediatric MS patients (≤18 years) diagnosed/treated between 2002-2012.
  • Extraction of demographic and cost data from a large healthcare enterprise data warehouse.
  • Comparison of health care utilization between high-cost and low-cost patient groups.

Main Results:

  • Total health care costs exceeded $1.5 million for 57 pediatric MS patients over 10 years.
  • The top 16% of patients accounted for nearly two-thirds of total costs.
  • Outpatient visits comprised 83.1% of total expenditures, while inpatient stays were most expensive per encounter ($2,924).

Conclusions:

  • Pediatric MS imposes a significant financial burden, with a disproportionate cost incurred by a small patient subset.
  • Outpatient care dominates overall spending, but inpatient care carries higher per-encounter costs.
  • Strategies focusing on efficient outpatient management and reducing inpatient utilization may lower costs and improve care.
Abstract

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