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Aphasia and literacy-the insider's perspective
Emma Kjellén1, Katja Laakso1, Ingrid Henriksson1
1Institute of Neuroscience and Physiology, Unit of Speech and Language Pathology, The Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
International Journal of Language & Communication Disorders
|January 1, 2017
Summary
People with aphasia (PWA) view literacy as a continuous recovery process, highlighting the importance of their personal reading and writing experiences in therapy. Understanding these individual journeys is key for effective interventions.
Area of Science:
- Neurolinguistics
- Speech and Language Therapy
- Qualitative Research
Background:
- Limited research exists on how individuals with aphasia (PWA) perceive their literacy skills.
- Understanding the insider's perspective on literacy is crucial for PWA and may inform clinical practice.
Purpose of the Study:
- To explore the lived experiences of literacy (reading and writing) in people with aphasia.
- To gain insight into the role literacy skills play in the daily lives of PWA.
Main Methods:
- A qualitative descriptive approach was employed.
- In-depth interviews were conducted with 12 participants with aphasia (post-stroke).
- Data were analyzed using qualitative content analysis.
Main Results:
- A central theme identified was 'literacy as an ongoing recovery process'.
- Subthemes included 'changes in conditions for literacy' and 'facing expectations about literacy' (self and others).
Conclusions:
- PWA can effectively articulate their personal literacy experiences.
- Literacy is integral to the lives of PWA, emphasizing the significance of individual experiences in designing reading and writing interventions.
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