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A Familiarization Protocol Facilitates the Participation of Children with ASD in Electrophysiological Research
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Health Care Transition Planning Among Adolescents with Autism Spectrum Disorder.

Casey Walsh1, Barbara Jones2, Alison Schonwald3

  • 1School of Social Work, The Institute for Collaborative Health Research and Practice, The University of Texas at Austin, Austin, TX, USA. walsh.casey@utexas.edu.

Journal of Autism and Developmental Disorders
|January 13, 2017
PubMed
Summary

Few youth with autism spectrum disorder (ASD) achieve optimal health care transition outcomes. Disparities exist in transition planning for Black youth, low-income families, and those with significant activity limitations, necessitating targeted interventions.

Keywords:
AdolescentsAutism spectrum disorderFamily-centered careHealth care transition planningMedical home

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Area of Science:

  • Health Services Research
  • Pediatrics
  • Developmental Disabilities

Background:

  • Effective health care transition is crucial for youth with autism spectrum disorder (ASD).
  • Existing research highlights challenges in transitioning youth with ASD to adult healthcare.
  • National standards for health care transition outcomes provide benchmarks for evaluation.

Purpose of the Study:

  • To assess the national health care transition core outcome achievement among youth with ASD.
  • To examine disparities in health care transition planning components within this population.
  • To identify specific subgroups of youth with ASD experiencing greater barriers to transition planning.

Main Methods:

  • Analysis of national data on health care transition outcomes for youth with ASD.
  • Evaluation of individual components of health care transition planning.
  • Stratification of results based on race/ethnicity, family income, and activity limitation severity.

Main Results:

  • Less than 10% of youth with ASD met the national transition core outcome.
  • Significant disparities in transition planning were observed for non-Hispanic Black youth.
  • Youth with family income below 400% of the federal poverty line and severe activity limitations also showed greater disparities.

Conclusions:

  • The majority of youth with ASD do not achieve optimal health care transition outcomes.
  • Racial, socioeconomic, and disability severity factors contribute to significant disparities in transition planning.
  • Targeted advocacy, research, and training are essential to reduce these inequities and improve transition services for all youth with ASD.