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Clinical Practice Protocol of Creative Music Therapy for Preterm Infants and Their Parents in the Neonatal Intensive Care Unit
Published on: January 7, 2020
Neonatal palliative care
1Department of Pediatrics, College of Physicians and Surgeons, Columbia University, New York City, New York, USA.
Insights
Neonatal palliative care (NPC) offers comfort for newborns with serious conditions. Standardized guidelines and multidisciplinary teams are crucial for improving infant comfort and family support.
Area of Science:
- Neonatology
- Palliative Care
- Pediatric Medicine
Background:
- Many newborns face life-limiting or life-threatening conditions.
- Comfort-focused care is essential when survival is uncertain or no longer the primary goal.
- Neonatal palliative care (NPC) addresses these complex needs.
Purpose of the Study:
- To review the most recent and relevant literature on neonatal palliative care (NPC).
- To highlight the importance of comfort-focused care for newborns with uncertain prognoses.
Main Methods:
- Literature review of recent and relevant studies on NPC.
- Analysis of existing perinatal and NPC programs.
- Identification of best practices and areas for standardization.
Main Results:
- Existing NPC programs often focus narrowly on end-of-life care.
- There is a significant need to standardize NPC practices and implement quality measures.
- Proposed guidelines address infant comfort, parental grief, and provider distress through multidisciplinary teams.
Conclusions:
- NPC is a specialized, multidisciplinary approach for newborns with life-limiting or complex conditions.
- Standardized guidelines are needed to ensure consistent comfort for infants.
- Further research is required to evaluate the effectiveness of NPC on infant comfort and satisfaction for families and providers.
Purpose Of Review:
A significant number of newborns are affected by life-limiting or life-threatening conditions. When prolongation of survival is no longer a goal, or prognosis is uncertain, a plan of care focused on the infant's comfort is essential. The aim of this article is to review the most recent and relevant literature regarding neonatal palliative care (NPC).
Recent Findings:
A variety of perinatal and NPC programs are described, but most programs focus exclusively on end-of-life care. Moreover, there is a great need to standardize practices and obtain follow-up quality measures.Guidelines to address infants' basic needs, to achieve a state of comfort, are proposed. A multidisciplinary team addressing the infants' medical and nonmedical needs, parental grieving process, and providers' distress is recommended.
Summary:
NPC is a unique multidisciplinary approach for the care of newborns affected by life-limiting or complex medical conditions with uncertain prognosis. Standardized guidelines should be implemented with the goal of achieving a state of comfort for newborns throughout the course of illness. Further studies are warranted to assess whether NPC effectively promotes newborns' comfort and parents and providers' satisfaction.
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