Wordless intervention for people with epilepsy and learning disabilities (WIELD): a randomised controlled feasibility...

Area of Science:

• Neurology
• Psychiatry
• Health Services Research

Background:

• Epilepsy and learning disabilities co-occur frequently, impacting quality of life.
• Interventions to improve quality of life for this population are needed.
• Picture-based communication aids may enhance engagement and understanding.

Purpose of the Study:

• To assess the feasibility of a randomized controlled trial for a picture booklet intervention.
• To evaluate the intervention's impact on epilepsy-related quality of life.
• To determine the acceptability and potential cost-effectiveness of the intervention.

Main Methods:

• A randomized controlled feasibility trial was conducted in English NHS epilepsy clinics.
• Participants with learning disabilities and epilepsy were recruited.
• The intervention group used a picture booklet with a researcher and carer, with ongoing use encouraged; the control group received usual care.

Main Results:

• Recruitment reached 40 participants (34% of eligible), with minimal missing data and attrition.
• The intervention showed potential benefits on the Epilepsy and Learning Disabilities Quality of Life Scale (ELDQOL) behavior and mood subscales at 4 and 20 weeks.
• The booklet and study methods were well-accepted, with no reported adverse events.

Conclusions:

• All feasibility criteria were met, indicating readiness for a definitive trial.
• The picture booklet intervention is feasible and potentially beneficial for individuals with epilepsy and learning disabilities.
• Further research with a full-scale trial is warranted.