Treatment diary for botulinum toxin spasticity treatment: a pilot study

Area of Science:

• Rehabilitation Medicine
• Neurology
• Patient-Reported Outcomes

Background:

• Spasticity management often involves botulinum toxin injections and therapy.
• Effective patient engagement and goal setting are crucial for treatment success.
• A dedicated diary can potentially improve patient involvement in spasticity treatment.

Purpose of the Study:

• To develop and evaluate a treatment diary for patients undergoing spasticity treatment.
• To assess patient satisfaction and involvement in their treatment process.
• To measure the impact of the diary on goal attainment and quality of life.

Main Methods:

• Development of a comprehensive treatment diary for spasticity.
• Inclusion of patient self-evaluation and therapist evaluation using the Goal Attainment Scale.
• Administration of satisfaction questionnaires and quality of life measures (WHO-QoL BREF, WHO-5).

Main Results:

• Ten patients participated in the pilot study.
• Patients expressed general satisfaction with the diary, reporting increased involvement and easier goal setting.
• No significant improvements in quality of life scores (WHO-QoL BREF, WHO-5) were observed.

Conclusions:

• The developed treatment diary enhances patient engagement and goal setting in spasticity management.
• While beneficial for patient involvement, the diary's impact on quality of life requires further investigation.
• Future research should explore diary modifications to potentially improve well-being outcomes.