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Revision and Expansion of the International Spinal Cord Injury Urinary Tract Infection Basic Data Set
Rochelle E Tractenberg1,2,3, Suzanne L Groah3,4, Sarah DiMeglio4
1Collaborative for Research on Outcomes and -Metrics, Silver Spring, Maryland.
Topics in Spinal Cord Injury Rehabilitation
|August 12, 2026
Summary
The International Spinal Cord Injury Urinary Tract Infection Basic Data Set was updated to improve global consistency in clinical data collection. The revised data set reflects current definitions and adds variables for more reliable SCI research.
Area of Science:
- Urology
- Neurology
- Clinical Data Standards
Background:
- Established in 2006, International Spinal Cord Injury (SCI) Data Sets standardize clinical data collection.
- The 2013 International SCI Urinary Tract Infection (UTI) Basic Data Set used outdated criteria for UTI definition.
- Evolving UTI definitions necessitate an update to the SCI UTI Basic Data Set.
Purpose of the Study:
- To revise the International SCI UTI Basic Data Set.
- Incorporate contemporary consensus definitions for UTI in SCI.
- Enhance global consistency in SCI clinical data collection.
Main Methods:
- A 3-phase qualitative revision process was employed.
- Included content analysis of existing SCI data sets and patient-centered questionnaires.
- Consensus refinement by an international panel of subject matter experts.
Main Results:
- An updated UTI Basic Data Set (version 2) was developed.
- Criteria align with a recent (2024) international consensus study on UTI.
- 22 new variables enhance data consistency and comparability, with 10-12 additional variables per case.
Conclusions:
- The revised International SCI UTI Basic Data Set incorporates current consensus definitions.
- Expanded standardized variables support more reliable, harmonized SCI data.
- Facilitates improved clinical and research data collection for individuals with SCI.
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