Mobile Technology Use by People Experiencing Multiple Sclerosis Fatigue: Survey Methodology

Area of Science:

• Neurology
• Digital Health
• Rehabilitation Medicine

Background:

• Fatigue is a primary symptom of multiple sclerosis (MS), significantly impacting daily life and leading to early retirement.
• Cognitive behavioral therapy (CBT) interventions, delivered individually, in groups, or online, have demonstrated effectiveness in managing MS-related fatigue.

Purpose of the Study:

• To survey mobile device usage and internet access among people with MS for potential health interventions.
• To characterize fatigue severity and its impact in a New Zealand sample of people with MS.
• To inform the development of a mobile intervention for MS fatigue management.

Main Methods:

• An online questionnaire survey was administered to assess participants.
• The study included 51 participants with MS, with an average age of 48.5 years.
• The majority of participants (77%) were female.

Main Results:

• Participants reported high fatigue levels, with a mean Neurological Fatigue Index score of 31.4 (SD 5.3).
• 84% of respondents indicated significant fatigue severity (scoring >3 on relevant questions).
• High mobile phone ownership (86%) and app usage (75%) were reported, with 92% accessing the internet from home.

Conclusions:

• New Zealand individuals with MS experience substantial fatigue severity and impact.
• Widespread mobile device ownership and internet access present an opportunity for digital health solutions.
• A mobile platform delivering CBT interventions could effectively reduce MS fatigue, given limited access to traditional therapies.