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Parent-to-parent peer support for parents of children with a disability: A mixed method study
Lucy Bray1, Bernie Carter1, Caroline Sanders2
1Faculty of Health and Social Care, Edge Hill University, Ormskirk, UK; Children's Nursing Research Unit, Alder Hey Children's NHS Foundation Trust, Liverpool, UK.
Objectives:
This paper will report on the findings of a study which investigated the influence of a befriending (parent-to-parent peer support) scheme on parents whose children have a disability or additional need. The scheme operated from an acute children's tertiary setting in the UK.
Methods:
A prospective concurrent mixed method design collected interview (n=70) and questionnaire (n=68) data at two time-points from befrienders (n=13) and befriendees (n=26).
Results:
The main qualitative findings of the study relate to the different degrees parents (befriendees and befrienders) moved from being lost, to finding and being a guide and getting to a better place. The quantitative findings demonstrate that parent-to-parent peer support has a positive influence on parents' levels of psychological distress and their ability to cope with being a parent of a child with a disability.
Conclusion:
The befriending scheme acted as a catalyst for many parents to move towards a place where they could grow and begin to flourish and thrive.
Practice Implications:
Professionals should inform parents who have a child with a disability that peer-to-peer parenting support schemes are a valuable and appropriate source of support and help.
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