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Published on: May 22, 2019
Stroke-related stigma among West Africans: Patterns and predictors
Fred Stephen Sarfo1, Michelle Nichols2, Suparna Qanungo2
1Kwame Nkrumah University of Science & Technology, Kumasi, Ghana; Komfo Anokye Teaching Hospital, Kumasi, Ghana.
Four out of five stroke survivors in Ghana experience stigma, impacting their mental health and quality of life. This study highlights the significant burden of stroke stigma in low and middle-income countries (LMICs).
Area of Science:
- Neurology
- Public Health
- Psychiatry
Background:
- Stroke significantly impacts low and middle-income countries (LMICs), with higher disability-adjusted life-years lost compared to high-income nations.
- Despite the known association between chronic disorders and stigma, research on stroke-related stigma in LMICs is notably scarce.
Purpose of the Study:
- To determine the prevalence, severity, contributing factors, and psychosocial effects of stigma among stroke survivors in LMICs.
- To investigate the lived experiences of stigma at personal, family, and community levels.
Main Methods:
- A cross-sectional survey was conducted with 200 stroke survivors at a tertiary medical center in Ghana.
- The 8-Item Stigma Scale for Chronic Illness (SSCI-8) was used to assess personal, family, and community stigma.
- Data on demographics, stroke characteristics, depression, and quality of life were collected and analyzed using Generalized Linear Models (GLM).
Main Results:
- Personal stigma had the highest mean score (13.7±5.7), significantly exceeding family (11.9±4.6) and social/community stigma (11.4±4.4).
- Approximately 80% of participants reported experiencing mild-to-moderate stigma.
- Higher stigma scores correlated with increased depression symptoms, urban living, and more severe post-stroke residual deficits.
Conclusions:
- A high prevalence (80%) of stigma was observed among stroke survivors in this Ghanaian cohort.
- Stigma was significantly associated with higher rates of depression and reduced quality of life.
- Further research is crucial to understand and address the multifaceted consequences of stroke stigma in LMIC settings.
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