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Raising Public Awareness of Clinical Trials: Development of Messages for a National Health Communication Campaign
Holly A Massett1, David M Dilts2, Robert Bailey3
1a Cancer Therapy Evaluation Program, Division of Cancer Treatment & Diagnosis , National Cancer Institute , Bethesda , Maryland , USA.
Abstract:
Clinical trials are essential for developing new and effective treatments and improving patient quality of life; however, many trials cannot answer their primary research questions because they fall short of their recruitment goals. This article reports the results of formative research conducted in two populations, the public and primary care physicians, to identify messages that may raise awareness and increase interest in clinical trials and be used in a national communication campaign. Results suggested that participants were primarily motivated to participate in clinical trials out of a self-interest to help themselves first. Messages illustrated that current treatments were tested via clinical trials, helped normalize trials as routine practices, and reduced concerns over trying something new first. Participants wanted messages that portray trials as state-of-the-art choices that offer some hope, show people like themselves, and are described in a clear, concise manner with actionable steps for them to take. The study revealed some differences in message salience, with healthy audiences exhibiting lower levels of interest. Our results suggest that targeted messages are needed, and that communication with primary health-care providers is an important and necessary component in raising patient awareness of the importance of clinical trials.
Insights
To boost clinical trial participation, messages should highlight self-interest and normalize trials as routine, state-of-the-art care. Engaging healthcare providers is key for patient awareness and recruitment.
Area of Science:
- Clinical research
- Public health communication
- Patient recruitment
Background:
- Clinical trials are crucial for medical advancement but often fail recruitment goals.
- Low participation rates hinder the development of new treatments and patient quality of life.
Purpose of the Study:
- To identify effective communication messages for a national campaign to increase clinical trial awareness and interest.
- To understand motivations and concerns of the public and primary care physicians regarding clinical trial participation.
Main Methods:
- Formative research conducted with two key populations: the general public and primary care physicians.
- Qualitative analysis to identify key themes and message preferences for a communication campaign.
Main Results:
- Participants are motivated by self-interest and the desire for personal health benefits.
- Messages normalizing clinical trials as standard, state-of-the-art care reduce concerns.
- Clear, concise messaging with actionable steps and relatable portrayals are preferred.
- Healthy audiences showed lower interest, indicating a need for targeted approaches.
Conclusions:
- Tailored messaging is essential to effectively recruit participants for clinical trials.
- Engaging primary care physicians is a critical strategy to enhance patient awareness and participation.
- Communication campaigns should focus on self-benefit, hope, and clear calls to action.
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