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The Ups and Downs of Parenting Young Children With Type 1 Diabetes: A Crowdsourcing Study
Jessica S Pierce1, Karen Aroian2, Cindy Caldwell1
1Nemours Children's Health System, Jacksonville, FL.
Objectives:
Parenting young children with type 1 diabetes (YC-T1D) entails pervasive challenges; parental coping may influence child and parent outcomes. This study used a qualitative descriptive design to describe these challenges comprehensively to inform the user-centered design of an Internet coping resource for parents.
Methods:
A "Parent Crowd" of 153 parents of children with T1D onset at ≤ 5 years old submitted textual responses online to open-ended questions about parenting YC-T1D. Systematic coding organized responses into domains, themes, and examples. A supplemental focus group of racial/ethnic minority parents enhanced the sample's diversity and validated findings from the Parent Crowd.
Results:
Similar domains and themes emerged from responses of crowdsourcing and focus group participants. In each domain, parenting YC-T1D was challenging, but there was also substantial evidence of positive coping strategies and adaptability.
Conclusions:
The study yielded rich data to inform user-centered design of an Internet resource for parents of YC-T1D.