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Related Experiment Videos

Deliberative Engagement Methods for Patient-Centered Outcomes Research.

Stephanie R Morain1, Danielle M Whicher2, Nancy E Kass3

  • 1Center for Medical Ethics and Health Policy, Baylor College of Medicine, One Baylor Plaza, Suite 310D, Houston, TX, 77030, USA. stephanie.morain@bcm.edu.

The Patient
|April 5, 2017
PubMed
Summary

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Deliberative Engagement Sessions (DES) effectively gather informed stakeholder preferences for health policy research. This method yields rich data but requires significant resources, necessitating careful study design for complex health policy issues.

Area of Science:

  • Health Policy Research
  • Stakeholder Engagement
  • Patient-Centered Outcomes Research (PCOR)

Background:

  • Growing emphasis on incorporating stakeholder perspectives into health research and policy.
  • Limited practical guidance available for researchers on the Deliberative Engagement Session (DES) method.
  • DES is a valuable approach for eliciting informed preferences from patients and stakeholders on policy issues.

Purpose of the Study:

  • To describe the Deliberative Engagement Session (DES) method and its relevance in contemporary health policy research.
  • To illustrate the application of DES using a patient-centered outcomes research (PCOR) study.
  • To discuss the strengths and challenges associated with employing the DES approach.

Main Methods:

  • Description of the Deliberative Engagement Session (DES) methodology.
Keywords:
Comparative Effectiveness ResearchEngaging StakeholderExit InterviewPolicy IssueProcedural Fairness

Related Experiment Videos

  • Case illustration using a recent patient-centered outcomes research (PCOR) study.
  • Analysis of strengths and challenges inherent in the DES approach.

    • Main Results:

    • DES methods generate rich, informed, and reflective stakeholder preferences.
    • The approach mitigates the risk of eliciting uninformed preferences or non-attitudes.
    • DES is resource-intensive, potentially limiting sample size and representativeness.

    Conclusions:

    • Deliberative Engagement Sessions (DES) are well-suited for engaging stakeholders in complex health policy research.
    • Careful design is crucial to maximize the benefits of DES despite resource demands.
    • The method enhances the quality and relevance of health policy research by integrating stakeholder insights.