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Living with hypertrophic cardiomyopathy and an implantable defibrillator

Peter Magnusson1,2, Jessica Jonsson3, Stellan Mörner4

  • 1Cardiology Research Unit, Department of Medicine, Karolinska Institutet, Karolinska University Hospital/Solna, SE-171 76, Stockholm, Sweden. peter.magnusson@regiongavleborg.se.

BMC Cardiovascular Disorders
|May 12, 2017
PubMed

Insights

Hypertrophic cardiomyopathy patients with implantable cardioverter-defibrillators (ICDs) adapt to device limitations, finding safety and acceptance. Despite challenges, they maintain hope and manage their condition effectively.

Area of Science:

  • Cardiology
  • Medical Sociology

Background:

  • Implantable cardioverter-defibrillators (ICDs) manage life-threatening arrhythmias but have long-term complications.
  • Patient perspectives on ICDs, particularly in hypertrophic cardiomyopathy (HCM), are underrepresented in research.

Purpose of the Study:

  • To explore and describe the lived experiences of patients with hypertrophic cardiomyopathy (HCM) who have received an implantable cardioverter-defibrillator (ICD).

Main Methods:

  • Qualitative analysis of 26 interviews with Swedish patients diagnosed with HCM and equipped with ICDs.
  • Utilized hermeneutics and latent content analysis to interpret patient narratives.

Main Results:

  • Patients aged 27-76 years experienced limitations due to HCM, particularly when progressing to heart failure.
  • ICDs were perceived as providing safety and were accepted as part of the body, even with inappropriate shocks.
  • Both HCM and ICDs impacted professional and leisure activities, especially for younger patients.
  • Patients adapted, accepted limitations, and managed challenges, reporting a good spirit and hope.

Conclusions:

  • Hypertrophic cardiomyopathy patients with ICDs demonstrate resilience, adapting to device-related challenges.
  • Despite physical and psychological impacts, patients find acceptance and maintain hope, integrating the ICD into their lives.
Abstract

Keywords:
Content analysisHermeneuticsHypertrophic CardiomyopathyImplantable cardioverter defibrillatorInterviewQualitative

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