Related Experiment Video
Updated: Mar 1, 2026

Oral Health Assessment by Lay Personnel for Older Adults
Published on: February 2, 2020
Assessing knowledge and attitudes about end of life: Evaluation of three instruments designed for adults with
R J Stancliffe1, M Y Wiese2, S Read3
1Centre for Disability Research and Policy, The University of Sydney, Sydney, NSW, Australia.
Background:
This paper examines the development and psychometric characteristics of three instruments about end of life, designed for use with adults with intellectual disability (ID). Respectively, the instruments assess understanding of the concept of death, end-of-life planning, and fear of death.
Methods:
Part 1: instruments were developed or adapted, and pilot tested with 11 adults with ID and 2 disability staff. Part 2: 39 adults with ID and 40 disability staff were assessed on all three instruments.
Results:
We evaluated comprehensibility, internal consistency, inter-rater reliability, subscale: total score correlations, missing data, and withdrawal. Psychometric findings were mostly good. Overall, 23% of participants with ID withdrew at some point. This outcome may have been as much due to assessment fatigue as to sensitive content. There were no adverse events.
Conclusions:
People with ID can reliably complete assessments about end-of-life. Generally, each instrument was found to be comprehensible, reliable and valid.
More Related Videos
Related Concept Videos
Ethical Dilemmas II
Kubler Ross's Stages of Dying
In denial, individuals reject the reality of their condition, often thinking, "This isn't true; I feel fine," as a way to protect themselves from...
Ethical Issues
Ethical Concerns in Healthcare:
Intellectual Disability
Assessment of the Gastrointestinal System II: Health Perception Pattern
Health Perception Patterns
Health perception patterns offer valuable insights into a patient's lifestyle habits and how they may impact their GI health. These patterns include:
Documentation in Long-Term and Home Healthcare Setting
Long-Term Care Facilities

