Related Experiment Video
Updated: Mar 1, 2026
04:44
Imaging Features of Systemic Sclerosis-Associated Interstitial Lung Disease
Published on: June 16, 2020
21.0K
Patients' views and needs about systemic sclerosis and its management: a qualitative interview study
Luc Mouthon1,2, Sophie Alami3, Anne-Sophie Boisard3
1Pôle de Médecine Interne, Centre de référence pour les vascularites nécrosantes et la sclérodermie systémique, hôpital Cochin, Assistance Publique-Hôpitaux de Paris (AP-HP), Université Paris Descartes, Faculté de Médecine, Paris, France. luc.mouthon@cch.aphp.fr.
BMC Musculoskeletal Disorders
|June 1, 2017
Summary
Systemic sclerosis (SSc) patients desire improved physician communication and individualized care. Addressing patient expectations for support and better disease management can enhance their quality of life.
Area of Science:
- Rheumatology
- Patient-centered care
- Qualitative research
Background:
- Systemic sclerosis (SSc) is a chronic disease impacting life expectancy and quality of life.
- Current management strategies require optimization to address patient needs.
- Understanding patient perspectives is crucial for improving care.
Purpose of the Study:
- To survey patient views on SSc and its management.
- To identify challenges in patient care.
- To enhance patient-physician relationships and healthcare strategies.
Main Methods:
- Qualitative study design.
- Semi-structured interviews and focus groups.
- Direct observation of an information session.
Main Results:
- Patients struggle with disease representation and experience psychological distress.
- Diverse coping strategies were observed among patients.
- Patients expect empathetic, research-involved physicians, and individualized management, including better diagnosis, follow-up, education, and support.
Conclusions:
- Optimizing SSc management requires enhanced patient-practitioner relationships.
- Individualized care plans based on patient profiles (coping strategies, treatment preferences) are essential.
- Addressing patient expectations can improve overall care and quality of life.
More Related Videos
Related Concept Videos
01:23Assessment of the Cardiovascular System I: Subjective Data
987
A thorough health history and physical assessment are essential for identifying cardiovascular disease (CVD) symptoms and distinguishing them from other health issues.
Initial Enquiry
Ask the patient about their primary concern and thoroughly explore all reported symptoms.
Medical History
Investigate past illnesses affecting the cardiovascular system, such as angina, anemia, rheumatic fever, congenital heart disease, stroke, thrombophlebitis, dysrhythmias, varicosities
Inquire about symptoms...
Initial Enquiry
Ask the patient about their primary concern and thoroughly explore all reported symptoms.
Medical History
Investigate past illnesses affecting the cardiovascular system, such as angina, anemia, rheumatic fever, congenital heart disease, stroke, thrombophlebitis, dysrhythmias, varicosities
Inquire about symptoms...
987
01:26Nephrotic Syndrome II : Assessment and Medical Management
281
IntroductionNephrotic syndrome is a kidney disorder marked by excessive protein loss in the urine, leading to various systemic complications. This condition often results from damage to the glomeruli—the kidney's filtering units—causing proteinuria, low blood protein levels, and fluid retention. Understanding the assessment, diagnosis, and management of nephrotic syndrome is essential for effective treatment and prevention of further kidney damage.AssessmentPatient History: Document...
281
01:24Cystic Fibrosis: Management
590
Cystic fibrosis (CF) is an autosomal recessive disorder that predominantly affects individuals of Northern European descent, occurring at a rate of 1 in 3500. It is caused by a genetic mutation in a gene on chromosome 7, most commonly the ΔF508 mutation, that codes for the cystic fibrosis transmembrane conductance regulator (CFTR) protein. This results in thicker mucus secretions and obstruction pathologies in multiple organs, including the lungs and sinuses.
Sinus disease and chronic...
Sinus disease and chronic...
590
01:17Assessment of the Gastrointestinal System I: Subjective Data
743
Assessing the gastrointestinal (GI) system is a complex process that begins with collecting subjective data. This data, collected through patient interviews, provides crucial insights into the patient's health history, perception patterns, and lifestyle habits, all contributing significantly to GI health.
Health History
The initial step in assessing the GI system is obtaining a comprehensive health history. This includes inquiring about the patient's history or presence of problems...
Health History
The initial step in assessing the GI system is obtaining a comprehensive health history. This includes inquiring about the patient's history or presence of problems...
743
01:29Chronic Obstructive Pulmonary Disease-V: Management
3.3K
Managing Chronic Obstructive Pulmonary Disease (COPD) involves a multifaceted approach to reduce symptoms, prevent exacerbations, improve overall health status, and slow disease progression. Key strategies include lifestyle modifications, pharmacotherapy, supportive therapies, and, in some cases, surgery. Here is an overview of the primary COPD management strategies:
Smoking Cessation
Smoking Cessation
3.3K
01:26Varicose Veins II: Diagnostic Studies and Interprofessional Care
258
Varicose veins, or varicosities, develop when the valves in the veins, which control blood flow, weaken or damage. It causes blood to pool and the veins to enlarge. Understanding the clinical manifestations, diagnostic approaches, and management options for varicose veins is crucial for effective treatment and relief.Clinical manifestationsClinical manifestations of varicose veins include a heavy, achy feeling or pain after prolonged standing or sitting. This discomfort can often be relieved by...
258