Consumer Perspectives on MyHealth Record: A Review

Area of Science:

• Health Informatics
• Consumer Health Informatics
• Public Health Policy

Background:

• Australia's national electronic health record system, My Health Record, aims to empower consumers in healthcare.
• Understanding consumer perspectives is vital for the system's success and adoption.

Purpose of the Study:

• To critically review existing literature on consumer perspectives of Australia's My Health Record (formerly PCEHR).
• To identify key themes related to awareness, concerns, and engagement with the national electronic health record.

Main Methods:

• Literature review of 12 articles from the Australian EHR Repository.
• Analysis focused on consumer viewpoints regarding My Health Record.

Main Results:

• Low levels of consumer awareness regarding My Health Record were identified.
• Significant concerns exist about data sharing, privacy, and equitable access.
• The shift from opt-in to opt-out raises questions about explicit consent.

Conclusions:

• Enhanced promotion and support are needed to improve consumer engagement.
• Exploring diverse access models may increase My Health Record utilization.
• Particular attention is required for populations at risk of digital exclusion to ensure equitable access.