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Engaging Stakeholders and Promoting Uptake of OMERACT Core Outcome Instrument Sets
Sean R Tunis1,2,3, Lara J Maxwell4,5,6, Ian D Graham1,2,3
1From the Center for Medical Technology Policy; Division of Rheumatology, Department of Medicine, Johns Hopkins University, Baltimore, Maryland; University of Alabama at Birmingham and Birmingham Veterans Affairs Medical Center, Birmingham, Alabama; SDG LLC, Cambridge, Massachusetts; Division of Immunology/Rheumatology, Stanford University School of Medicine, Palo Alto, California, USA; Centre for Practice-Changing Research, Ottawa Hospital Research Institute; Ottawa Hospital Research Institute, Clinical Epidemiology Program; School of Epidemiology, Public Health and Preventive Medicine, Faculty of Medicine, University of Ottawa; Cardiovascular Research Methods Centre, University of Ottawa Heart Institute; Department of Epidemiology and Community Medicine, University of Ottawa; Department of Medicine, Faculty of Medicine, University of Ottawa; Cochrane Musculoskeletal, University of Ottawa, Ottawa; Musculoskeletal Health and Outcomes Research, St. Michael's Hospital; Institute for Work and Health; Department of Occupational Science and Occupational Therapy, Rehabilitation Sciences Institute and the Institute for Health Policy Management and Evaluation, University of Toronto, Toronto, Ontario, Canada; Centre for Health Policy, Melbourne School of Population and Global Health, University of Melbourne, Melbourne; Sydney Medical School, Institute of Bone and Joint Research and Department of Rheumatology, Royal North Shore Hospital, St. Leonards, Australia; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds and UK National Institute for Health Research (NIHR) Leeds Musculoskeletal Biomedical Research Unit, Leeds, UK; Hôpital Ambroise Paré, Rheumatology Department, Boulogne-Billancourt; INSERM U1173, Laboratoire d'Excellence INFLAMEX, UFR Simone Veil, Versailles-Saint-Quentin University, Montigny-le-Bretonneux; Sorbonne Universités, UPMC Univ Paris 06; AP-HP, Pitié Salpêtrière Hospital, Department of Rheumatology, Paris, France; Department of Medical Humanities, VU University Medical Centre/EMGO+ Institute, Amsterdam, the Netherlands.
This study introduces a new knowledge translation framework to improve stakeholder involvement in core outcome set development. It also offers strategies to increase the use of these important outcome measures in research.
Area of Science:
- Rheumatology research
- Health outcomes research
- Knowledge translation in medicine
Background:
- Core outcome sets are crucial for standardizing research but their uptake is inconsistent.
- Knowledge translation strategies are needed to bridge the gap between developing and implementing core outcome sets.
Purpose of the Study:
- To develop a formal knowledge translation framework for the Outcome Measures in Rheumatology (OMERACT) community.
- To promote the adoption and use of recommended core outcome domain and instrument sets.
Main Methods:
- A workshop was held at OMERACT 2016 with 86 attendees from diverse stakeholder groups.
- Participants discussed strategies to enhance stakeholder involvement and promote uptake of core outcome sets, including the role of post-regulatory decision makers.
Main Results:
- A novel "OMERACT integrated knowledge translation" framework was developed, formalizing knowledge translation strategies.
- Strategies were created to improve stakeholder engagement in core outcome set development.
- Innovative methods were identified to promote the uptake of OMERACT core outcome sets.
Conclusions:
- The developed guidance is preliminary and based on workshop participant views.
- Future work will involve broader stakeholder engagement to refine methods and processes for knowledge translation in OMERACT.
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