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Summary
This summary is machine-generated.

Older individuals with haemophilia (PWH), who did not receive early replacement therapy, experience age-related physical issues. A 12-month multidisciplinary program showed high satisfaction and potential for long-term benefits in managing these challenges.

Keywords:
ageingbalancehaemophiliaoccupational therapyposturerehabilitation

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Area of Science:

  • Hematology
  • Rehabilitation Medicine
  • Geriatrics

Background:

  • Individuals with haemophilia (PWH) born before the mid-1970s lacked early replacement therapy, leading to premature musculoskeletal and functional decline.
  • This cohort, despite being relatively young, exhibits physical limitations often seen in elderly populations due to historical treatment limitations.

Purpose of the Study:

  • To implement and evaluate a 12-month multidisciplinary training program for older PWH.
  • To empower patients with information and skills to manage physical handicaps and functional limitations resulting from early-life inadequate haemophilia management.
  • To enhance coping mechanisms for the chronic disease and prevent further disabilities.

Main Methods:

  • A 12-month project involving 40 patients with severe or moderate haemophilia A or B, born before the mid-1970s.
  • Multidisciplinary training led by physiotherapists and occupational therapists at an Italian comprehensive haemophilia treatment center.
  • Data collection and comparison before and after the intervention period.

Main Results:

  • The 12-month program resulted in marginal improvements in patient outcomes.
  • Patient satisfaction with the program was notably high.
  • The study provides a foundational model for future long-term interventions.

Conclusions:

  • While short-term improvements were modest, the program's high satisfaction indicates its value.
  • The project serves as a blueprint for future, long-term rehabilitation strategies for this patient group.
  • The findings suggest the potential for sustained patient engagement and improved quality of life through continued program implementation.