Related Experiment Video

Updated: Feb 24, 2026

Author Spotlight: Effect of Left Atrial Ligation on Avian Embryonic Hearts and HLHS Implications
04:37

Author Spotlight: Effect of Left Atrial Ligation on Avian Embryonic Hearts and HLHS Implications

Published on: June 16, 2023

1.8K

Utilisation of early intervention services in young children with hypoplastic left heart syndrome

Kathleen A Mussatto1, Danielle Hollenbeck-Pringle2, Felicia Trachtenberg2

  • 11Children's Hospital of Wisconsin,Herma Heart Center, Milwaukee,Wisconsin,United States of America.

Cardiology in the Young
|August 30, 2017
PubMed

Insights

Despite significant neurodevelopmental delays in children with hypoplastic left heart syndrome, early intervention services were underutilized. This highlights a need to improve access to developmental support for these high-risk children.

Area of Science:

  • Pediatric Cardiology
  • Neurodevelopmental Pediatrics
  • Public Health

Background:

  • Children with hypoplastic left heart syndrome (HLHS) face a high risk of neurodevelopmental delays.
  • Current guidelines advocate for systematic neurodevelopmental evaluation and early intervention (EI) services for affected children.
  • The Single Ventricle Reconstruction Trial (SVRT) provides a unique, large-scale dataset for studying EI utilization in HLHS.

Purpose of the Study:

  • To determine the type and prevalence of early intervention services used by children with HLHS from ages 1 to 4 years.
  • To identify factors associated with the utilization of these services within the SVRT cohort.
  • To assess the impact of social risk and geographic factors on EI service use.

Main Methods:

  • Analysis of data from 14-month neurodevelopmental assessments and annual medical history forms from the SVRT.
  • Utilized Fisher exact tests and logistic regression to examine associations between variables.
  • Assessed the influence of social risk and geographic variations on service utilization.

Main Results:

  • Over half of the children (52-69%) did not receive any EI services during the assessed period.
  • Service utilization decreased significantly by year 4 (31%) compared to earlier years (40-48%).
  • Parent-reported significant developmental delays were noted in 18-43% of children at ages 3 and 4, with no association with social risk but significant geographic disparities.

Conclusions:

  • Early intervention service utilization remains low in children with HLHS, despite identified neurodevelopmental delays.
  • Improved survival rates in HLHS necessitate a greater focus on optimizing developmental outcomes.
  • Strategies to enhance enrollment in early intervention services are crucial for this population.
Abstract

Keywords:
CHDearly interventionneurodevelopmental disorders

More Related Videos

A Modified Sonographic Algorithm for Image Acquisition in Life-Threatening Emergencies in the Critically Ill Newborn11:27

A Modified Sonographic Algorithm for Image Acquisition in Life-Threatening Emergencies in the Critically Ill Newborn

Published on: April 7, 2023

7.6K
Hemodynamic Precision in the Neonatal Intensive Care Unit using Targeted Neonatal Echocardiography09:31

Hemodynamic Precision in the Neonatal Intensive Care Unit using Targeted Neonatal Echocardiography

Published on: January 27, 2023

1.7K

Related Concept Videos

Cardiomyopathy III: Hypertrophic Cardiomyopathy01:29

Cardiomyopathy III: Hypertrophic Cardiomyopathy

Hypertrophic cardiomyopathy, or HCM, is an autosomal dominant genetic disorder characterized by asymmetric left ventricular hypertrophy without ventricular dilation. It is more common in men and is typically diagnosed in young, athletic adults.EtiologyHCM is primarily genetic and is caused by mutations in genes encoding sarcomeric proteins. Researchers have identified over 1400 mutations across at least 11 different genes. Among these, the most frequently occurring mutations are found in the...
553
Heart Failure VI: Adjunct Therapies01:22

Heart Failure VI: Adjunct Therapies

Additional therapies for treating patients with heart failure (HF) may include procedural interventions, supplemental oxygen, the management of sleep disorders, and nutritional therapy.Procedural InterventionsImplantable Cardioverter-Defibrillator: For patients at risk of life-threatening arrhythmias due to severe left ventricular dysfunction, an Implantable Cardioverter-Defibrillator (ICD) can detect and terminate these arrhythmias, preventing sudden cardiac death and improving survival rates.
438
Cardiomyopathy V: Interprofessional Care01:29

Cardiomyopathy V: Interprofessional Care

Managing cardiomyopathy involves addressing underlying or precipitating causes, treating heart failure with medications, and implementing dietary changes and a balanced exercise and rest regimen.Lifestyle ModificationsCardiomyopathy patients should adopt a low-sodium diet to reduce fluid retention and manage heart failure. A personalized exercise and rest plan helps maintain physical fitness without overstraining the heart. Avoiding alcohol and tobacco is essential to prevent further damage to...
510
Mitral Stenosis I: Introduction01:22

Mitral Stenosis I: Introduction

Mitral Valve Stenosis (MVS) is a heart condition where the mitral valve narrows, impeding blood circulation from the left atrium to the left ventricle. The etiology and pathophysiology of this condition are multifaceted, leading to a cascade of cardiovascular complications.Causes of Mitral Valve StenosisRheumatic Heart Disease: It is the main cause of mitral valve stenosis, particularly in developing nations. This condition arises from rheumatic fever, an inflammatory illness resulting from...
888