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Published on: February 2, 2020
Discussing Advance Care Planning and Directives in the General Population
Pascal J de Caprariis1, Bronwyn Rucker1, Claudia Lyon1
1From the Departments of Medicine and Family Medicine, and the Division of General Internal Medicine and Clinical Innovation, NYU Lutheran Medical Center, Brooklyn, and the Palliative Care Consulting Service, Brooklyn Hospital Center, Brooklyn, New York.
Advance care planning (ACP) allows individuals to document future healthcare wishes. Barriers like culture and limited professional training can impede effective ACP discussions for healthy adults.
Area of Science:
- Medical Ethics
- Health Policy
- Patient Advocacy
Background:
- Advance care planning (ACP) has evolved, addressing medical and legal aspects of end-of-life care.
- Legislation like the Patient Self-Determination Act and advance directive forms facilitate patient autonomy.
- Despite progress, barriers hinder comprehensive ACP discussions for all individuals.
Purpose of the Study:
- To explore challenges and influencing factors in advance care planning for healthy adults.
- To identify barriers affecting ACP discussions, including cultural, religious, and familial influences.
- To provide guidance for healthcare professionals on initiating and conducting effective ACP conversations.
Main Methods:
- Literature review on existing ACP frameworks and identified barriers.
- Analysis of factors influencing decision-making in advance care planning.
- Exploration of healthcare professionals' training and perspectives on ACP initiation.
Main Results:
- Patient Self-Determination Act and advance directives have improved recognition of patient wishes.
- Religion, culture, education, and family dynamics present significant barriers to ACP.
- Limited training for healthcare professionals hinders ACP conversation initiation and effectiveness.
Conclusions:
- Healthcare professionals require enhanced training to effectively facilitate ACP discussions.
- Addressing cultural and familial factors is crucial for successful advance care planning.
- Improved ACP processes ensure patient autonomy and informed decision-making for future care.
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